Parents were not told that children's data was part of AI trial

Six parents are indignant that they were told nothing about the Child and Adolescent Psychiatric Department in Roskilde taking part in a trial with artificial intelligence (AI) and patient data. It happened during a period when their children were in treatment.

The regions now acknowledge that they may have acted "inadequately." Previously, they rejected all criticism.

Sensitive information

The Child and Adolescent Psychiatric Clinic in Roskilde handles very private information. It may concern a child who has an anxiety attack before bedtime, a new meltdown at school, sleepless nights or assessment for autism.

For a period, an American AI had access to this kind of information as part of the trial. The parents were not informed and were not asked to consent to it.

What is the case about?

The core issue is what is called informed consent. It means that you must know what your information is used for and have the option to say yes or no. According to the parents, that did not happen. The regions now acknowledge that the handling of consent has not been good enough.